Privacy policy

At the International Federation of Anti-Leprosy Associations (ILEP), we’re committed to protecting and respecting your privacy. This Policy explains when and why we collect personal information about people who visit our website, how we use it, the conditions under which we may disclose it to others and how we keep it secure.

We may change this Policy from time to time so please check this page occasionally to ensure that you’re happy with any changes. By using our website, you’re agreeing to be bound by this Policy.

Any questions regarding this Policy and our privacy practices should be sent by email to or by writing to International Federation of Anti-Leprosy Associations, Quai de L’ile 13, 1204 Geneva, Switzerland. Alternatively, you can telephone +41 22 596 22 40.

Who are we?

We’re ILEP, the International Federation of Anti-Leprosy Associations. A federation of 13 international non-governmental organisations, united to create a world free of leprosy.

The International Federation of Anti-Leprosy Associations (ILEP), is a not-for-profit organisation and Association (Commercial register number CHE-179.299.957). The registered address is Quai de l’ile 13, 1204 Geneva, Switzerland. The International Federation of Anti-Leprosy Associations (ILEP), comprises of ILEP and its trading subsidiaries.

Our members work with the World Health Organization, NGOs, governments, the Novartis Foundation, the Nippon Foundation and other philanthropic trusts as well as other individual supporters.

How and why we collect information from you?

We collect contact details about members who sign up to receive news updates and on our registered members (name, email and phone numbers). We do not hold any sensitive information such as payment or medical records. We do not pass contact details onto 3rd parties for commercial purposes.

We also use Google Analytics to understand how people use our site, in an effort to improve the platform for users.

What type of information is collected from you?

The personal information we collect might include; your name, address, email address, IP address, and information regarding what pages are accessed and when.

This is collected from individuals who visit our site and sign up to receive ILEP email updates, or from members who sign up to use the Members section of the website. As we do not take donations or payments through our site, we do not collect or hold any payment information.

How is your information used?

We may use your information to:

  • seek your views or comments on the services we provide;
  • to gain insights about how visitors use our website and identify activity and trends to improve the experience on our site and update relevant content, this is not used to identify individuals;
  • notify you of changes to our services;
  • send you communications which you have requested and that may be of interest to you.
  • activities, promotions of our associated companies goods and services;
  • process a grant or job application.

We review our retention periods for personal information on a regular basis. We will hold your personal information on our systems for as long as is necessary for the relevant activity, or as long as is set out in any relevant contract you hold with us.

Who has access to your information?

Only ILEP federation members of staff have access to your information. We will not sell or rent your information to third parties. We will not share your information with third parties for marketing purposes.

Third Party Service Providers working on our behalf: We may pass your information to our third party service providers, agents subcontractors and other associated organisations for the purposes of completing tasks and providing services to you on our behalf (for example to process event invitations). However, when we use third party service providers, we disclose only the personal information that is strictly necessary to deliver the service and we have a contract in place that requires them to keep your information secure and not to use it for their own direct marketing purposes. Please be reassured that we will not release your information to third parties beyond the ILEP federation for them to use for their own direct marketing purposes.

Your choices

You have a choice about whether or not you wish to receive information from us. If you do not want to receive direct marketing communications from us about the vital work we do for a world free from leprosy and our exciting services, then you can request removal by ‘opting-out’.

We will not contact you for marketing purposes by email, phone or text message unless you have given your prior consent. We will not contact you for marketing purposes by post if you have indicated that you do not wish to be contacted. You can change your marketing preferences at any time by contacting us by email: or telephone on +41 22 596 22 40.

How you can access and update your information

The accuracy of your information is important to us. We’re working on ways to make it easier for you to review and correct the information that we hold about you. In the meantime, if you change email address, or any of the other information we hold is inaccurate or out of date, please email us at, or write to us at ILEP Federation, Quai de l’ile 13, 1204 Geneva, Switzerland. Alternatively, you can telephone +41 22 596 22 40.

You have the right to ask for a copy of the information the International Federation of Anti-Leprosy Associations (ILEP) holds about you and request we delete this information.

Security precautions in place to protect the loss, misuse or alteration of your information

When you give us personal information, we take steps to ensure that it’s treated securely. Any sensitive information is encrypted and protected with an SSL provided through Let’s Encrypt Authority X3. When you are on a secure page, a lock icon will appear on the bottom of web browsers such as Microsoft Internet Explorer. Once we receive your information, we make our best effort to ensure its security on our systems. Where we have given (or where you have chosen) a password which enables you to access certain parts of our websites, you are responsible for keeping this password confidential. We ask you not to share your password with anyone.

Use of ‘cookies’

What are cookies?

As is common practice with almost all professional websites this site uses cookies, which are tiny files that are downloaded to your computer, to improve your experience. This page describes what information they gather, how we use it and why we sometimes need to store these cookies. We will also share how you can prevent these cookies from being stored however this may downgrade or ‘break’ certain elements of the site’s functionality.

For more general information on cookies see this article on HTTP Cookies.

How we use cookies

We use cookies for a variety of reasons detailed below. Unfortunately, in most cases, there are no industry standard options for disabling cookies without completely disabling the functionality and features they add to this site. It is recommended that you leave on all cookies if you are not sure whether you need them or not in case they are used to provide a service that you use.

Disabling cookies

You can prevent the setting of cookies by adjusting the settings on your browser (see your browser “Help” for how to do this). Be aware that disabling cookies will affect the functionality of this and many other websites that you visit. Disabling cookies will usually result in also disabling certain functionality and features of this site. Therefore it is recommended that you do not disable cookies.

The cookies we set

Google Analytics

This site uses Google Analytics which is one of the most widespread and trusted analytics solutions on the web for helping us to understand how you use the site and ways that we can improve your experience. These cookies may track things such as how long you spend on the site and the pages that you visit so we can continue to produce engaging content. For more information on Google Analytics cookies, see the official Google Analytics page.

Links to other websites

Our website may contain links to other websites run by other organisations. This privacy policy applies only to our website‚ so we encourage you to read the privacy statements on the other websites you visit. We cannot be responsible for the privacy policies and practices of other sites even if you access them using links from our website. In addition, if you linked to our website from a third party site, we cannot be responsible for the privacy policies and practices of the owners and operators of that third party site and recommend that you check the policy of that third party site.

Hosting and Transfer of information

As part of the services offered to you through this website, the information which you provide to us may be transferred to countries outside the European Union (“EU”). By submitting your personal data, you’re agreeing to this transfer, storing or processing. If we transfer your information outside of the EU in this way, we will take steps to ensure that appropriate security measures are taken with the aim of ensuring that your privacy rights continue to be protected as outlined in this Policy.

Our hosting company is Infomaniak Network SA. The company is based in Geneva, Switzerland, where all of its employees work. It wholly owns its three data centers and all elements critical to the functioning of the services and products provided by the company (both software and hardware). To ensure better control, IT solutions are developed and maintained internally only and the company gives preference to Swiss and European products.

If you use our services while you are outside the EU, your information may be transferred outside the EU in order to provide you with those services.

Review of this Policy

We keep this Policy under regular review. This Policy was last updated in May 2018.